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21 Comments
>The NHS App is also set to benefit from initiatives – Streeting says the Government has “bigger ambitions for growth”. More than 34 million people in England are registered on the app, which offers a variety of features to empower patients. In September, a new prescription tracking feature was trialled in another move to streamline patient treatment.
>Streeting said his task is to unlock the untapped potential of the single-payer system so that “citizens view their data in the same way they view their taxes.”
>He said: “The ability to use data at a population will enable us to do not just the breakthroughs in science and technology, but also [have] more efficient use of resources, more equitable distribution of health and care services, and the ability to really zone in on the health inequalities that apply to our society.”
Sorry Wes, you mean: the ability to sell that data to whoever you please, PARTICULARLY transferring it to the US for processing in Silicon Valley purely for monetisation purposes? And so it’s easily accessible to private corporations when we eventually move to a private insurance model?
Uncertain if he means we should be able to see our data the same way as we can see how much tax we pay, or if we should view providing our data to be used across government as mandatory as taxes
… probably both?
The massive dicks in government have such tiny penises
I started to sign up for the prescription part of the app and got hacked almost immediately so no way would I be a part of this idiotic scheme until there are guarantees and safeguards in place.
He is probably my least favourite current government minister
It’s as if someone has designed a caricature of ‘spiv becomes senior politician’
“so that “citizens view their data in the same way they view their taxes.”
As in owed to the government?
Didn’t Peter Thiel / Palantir recently pick up some big NHS data contracts?
Its this sort of paranoid bullshit that prevents IT deployment in the NHS. Its what killed digital patient records 20 years ago. Its idiotic paranoid ill informed and illogical.
Leave the security if the data to people that understand the methods used to secure it.
The data the NHS holds is a huge mine of disease information, unparalleled in the world or in the history of mankind, hugely valuable both to medical research and as an asset for the NHS to exploit for our benefit. Drug companies would pay a huge amount for data produced from this information.
People’s names and personal identifiable information will be obscured, its of no value to anyone using the data and believe me, they don’t want the responsibility of having it either!. Its the statistical patterns of disease and other medical information that’s got value.
The government could even legislate that the data cannot leave the UK and any analysis of it must be done here. This would provide a boost to research here if at the expense of reducing the economic value of the data itself.
No Wes, if you genuinely believe this you’ve been at the coolade for too long.
If we all had a choice that was honoured and if the revenue generated was directly fed back into the NHS and not monetised elsewhere then maybe it would be worthwhile discussing.
On the proviso that any company wanting to benefit from the data had their operations in the UK and the data never left here. On top of that any and all advances in health medicine or care based on use of the data to be jointly and equally owned and the benefit/IP also equally shared by the NHS/Us.
The data is worth an astronomic amount of money, Wes knows it as do the companies looking to gain access to it.
Such a thoroughly unlikeable bloke. Certain people seem to talk about him as a future Labour leader but I’m unsure what qualities he’s supposed to have demonstrated to suggest he’s at all suitable.
I’m sure his partner being selected as a Labour candidate in the recent election and then being handed a 100k job with the party afterwards is all just a massive coincidence as well.
Is it just me who read that article thinking it’s a a word salad? It’s like Streeting thinks he can just say words like “data” and “technology” and it makes him sound like he knows what he’s talking about.
NHS IT is a shambles. And the principle that people ought to have access to their own medical information without barriers is a completely reasonable one.
However I get the feeling all of this kind of talk is designed to “look, squirrel!” us away from the fact that reform is not a substitute for adequate funding.
Case in point. People being able to see their test results on the app is great. One consequence of this though is more people booking a-not-strictly-necessary appointment to discuss trivially abnormal results. Within a system with adequate capacity, this is fine. Within a system which is creaking and already failing to supply enough appointments to meet existing demand for mostly more important matters? Not so much.
We should absolutely be sharing huge amounts of population level medical data.
However this should be owned by, processed by, and analysed by the NHS for public good. Any money generated through worldwide research/breakthroughs/therapies should be owned by the public.
The cost of creating a world class analytics company would be a fraction of the budget of the NHS.
Yeah, no. If we share the data then we should be compensated for our data. You think they wouldn’t and haven’t earned millions? People trying to gas light you by saying stuff like, ‘it’ll help the world’, it very well might. But that’s each individual person’s decision and right. Just like no one wants to be experimented on for the betterment of human kind even though that would also help the world.
The company they use, Palantir, is also a weapons manufacturing company that makes millions on weapons of war and genocide, field testing new AI weapons on civilian populations, passing data to groups like the CIA.
Tldr; fuck off Wes.
What does he mean by this?
That we owe our data to the state?
I work in this field, data protection for heath data, and yeah while it will be great news for us as a company, the entire reason I got into data protection and did my LLM on it was because I believe in your personal rights over your own information, I don’t like this path one bit.
My data my rights.
I will decide who I share it with.
Not let you SELL it.
Streeting is incredibly unlikeable and I fear Labour think he is the future. He is not.
>patients should view data sharing ‘the same as taxes
What, you mean the richer you are, the less data you will have to share?
Until the government can show at least a kindergarten level of understanding when it comes to data security, no thanks.
I feel like people are opposed to this without really knowing what it means, or likely don’t understand how research works. You need data to do research and the NHS is a treasure trove of data for disease study and patient outcomes. People donating money to cancer research, what do you think they do exactly? They’ll want data on every person with a particular cancer to spot trends and make improvements.
Do people think that the data is going to be used for some Gattaca style exclusion to society? Do you know how much data the government uses that you contribute to involuntarily? I mean the census is mandatory for Godsake, that data is used to predict demand on local services and the country. Nobody cares that it’s got your name on it.
Sick Man of Europe trying to convince everyone else This Is Good, Actually
> along with enabling groundbreaking science and innovative technology.
^^ There you go. I knew selling our data for profit would be in there somewhere.