It’s a trap.
If you can wait 10 years without getting distracted and forgetting, then you don’t have ADHD
aspie99uk on
Christ.
I waited 10 years for an autism diagnosis, then another 2 years for a few useless post-diagnostic support sessions.
About the only useful thing to come of that was their willingness to refer for an ADHD diagnosis which apparently they should have done anyway based on the signs of ADHD in my autism assessment.
And then I have to wait 10 years for that?
And then wait for drugs which are in short supply?
Getting PIP is an absolute nightmare too, I could use the money for a private diagnosis.
What the fuck is the point? My youth is long gone. My young adult years are almost over. The prime of my life is almost behind me and I’m still stuck waiting.
diagonalfart on
I’ve been diagnosed twice, once as a child and once as an adult. I am now on the emergency list for meds… been on it 2 years
FeralSquirrels on
Unfortunately this is the result of what we’re all very well aware of and isn’t directly the fault of those providing the diagnosis in the first place.
Only last year I was told the wait times for diagnosis of any neurodivergent or similar cases were taking on average a minimum of 2.5 or longer years to get through the waiting list.
Since then from someone who just got on the list, they were told it was more like 5.
The NHS, as ever, needs a huge influx of investment and funding to adequately be able to serve the country and it’s people correctly – all the while re-shuffling the staffing so it’s not top-heavy with management and more of the actual staff delivering services.
LordLucian on
I been waiting 4 years already, I was told my appointment will be roughly in August of 2026.
I’m losing my mind and feeling abandoned.
Playful_Flower5063 on
No shit, my 7 year old is on a 38 month waitlist for adhd meds, this is after a 3 year wait for diagnosis.
JedsBike on
Just paid £3k for a private diagnosis because of the wait times
ActivityImpossible45 on
I got referred for an assessment and waited just 2 weeks . This was back in December
Plus_Dance_931 on
Im half way there. Shame my life has already fallen to pieces during the 5 year wait
smokesletsgo13 on
Lol. Seeing this a day before my GP appointment concerning ADHD
Original_Bad_3416 on
I have an ADHD diagnosis, however getting the medication is so hard. GPs don’t prescribe
Illustrious-Wonder56 on
And then you get to go through the circus of getting meds…
stuffsgoingon on
What’s funny is my doctor has given me the paper work for ADHD 3 times and I’ve never managed to get it filled in and given it back. So he knows I have it, just don’t have a diagnosis
JSM-90 on
I realise this will likely be an unpopular opinion, but we need to have a national debate over the purpose of the NHS, and whether its realistic to think that one public service can possibly do everything that is currently expected of it. When the NHS was first created it would have been inconceivable to think that we’d expect it to diagnose and support people for things like ADHD. Add to this an aging and increasingly unhealthy population and it’s no wonder the NHS is on its knees.
confuzzledfather on
We’ve been waiting so long since we first started trying to get an NHS diagnosis in primary school that my daughter just got a letter to say she is being removed from the waiting list because she has moved out of the area (to university).
billysmallz on
I’ve been on the list for a year and a half and was told it was a 12 month wait at the time
wkavinsky on
Assuming diagnosis starts at some point when you are in Uni, you won’t get a diagnosis, or the help you need until the prime career-settings years of your life are passed, leaving you at a lifelong disadvantage compared to normal people.
Hugh_Jampton on
NHS: If you could die before your appointment that would help us greatly
PiplupSneasel on
I was diagnosed last year and have been waiting for the medication, but there’s STILL a shortage.
It’s an absolute shitshow but it’s an invisible disability so no-one gives a fuck.
Brief-Tomatillo-587 on
Genuine question- what is the benefit of having a diagnosis?
Is it for medication?
Completely ignorant sorry
Anselmic on
I’ve been waiting nearly 10 years for a gender dysphoria diagnosis. And here I was starting to feel as if the NHS just hates trans people.
rewen95 on
I recently waited almost 2yrs for an ADHD diagnosis, right now I have to wait for 7mnths for medicine
Traffodil on
…then once diagnosed, you won’t be able to get hold of the medication anyway.
23 Comments
It’s a trap.
If you can wait 10 years without getting distracted and forgetting, then you don’t have ADHD
Christ.
I waited 10 years for an autism diagnosis, then another 2 years for a few useless post-diagnostic support sessions.
About the only useful thing to come of that was their willingness to refer for an ADHD diagnosis which apparently they should have done anyway based on the signs of ADHD in my autism assessment.
And then I have to wait 10 years for that?
And then wait for drugs which are in short supply?
Getting PIP is an absolute nightmare too, I could use the money for a private diagnosis.
What the fuck is the point? My youth is long gone. My young adult years are almost over. The prime of my life is almost behind me and I’m still stuck waiting.
I’ve been diagnosed twice, once as a child and once as an adult. I am now on the emergency list for meds… been on it 2 years
Unfortunately this is the result of what we’re all very well aware of and isn’t directly the fault of those providing the diagnosis in the first place.
Only last year I was told the wait times for diagnosis of any neurodivergent or similar cases were taking on average a minimum of 2.5 or longer years to get through the waiting list.
Since then from someone who just got on the list, they were told it was more like 5.
The NHS, as ever, needs a huge influx of investment and funding to adequately be able to serve the country and it’s people correctly – all the while re-shuffling the staffing so it’s not top-heavy with management and more of the actual staff delivering services.
I been waiting 4 years already, I was told my appointment will be roughly in August of 2026.
I’m losing my mind and feeling abandoned.
No shit, my 7 year old is on a 38 month waitlist for adhd meds, this is after a 3 year wait for diagnosis.
Just paid £3k for a private diagnosis because of the wait times
I got referred for an assessment and waited just 2 weeks . This was back in December
Im half way there. Shame my life has already fallen to pieces during the 5 year wait
Lol. Seeing this a day before my GP appointment concerning ADHD
I have an ADHD diagnosis, however getting the medication is so hard. GPs don’t prescribe
And then you get to go through the circus of getting meds…
What’s funny is my doctor has given me the paper work for ADHD 3 times and I’ve never managed to get it filled in and given it back. So he knows I have it, just don’t have a diagnosis
I realise this will likely be an unpopular opinion, but we need to have a national debate over the purpose of the NHS, and whether its realistic to think that one public service can possibly do everything that is currently expected of it. When the NHS was first created it would have been inconceivable to think that we’d expect it to diagnose and support people for things like ADHD. Add to this an aging and increasingly unhealthy population and it’s no wonder the NHS is on its knees.
We’ve been waiting so long since we first started trying to get an NHS diagnosis in primary school that my daughter just got a letter to say she is being removed from the waiting list because she has moved out of the area (to university).
I’ve been on the list for a year and a half and was told it was a 12 month wait at the time
Assuming diagnosis starts at some point when you are in Uni, you won’t get a diagnosis, or the help you need until the prime career-settings years of your life are passed, leaving you at a lifelong disadvantage compared to normal people.
NHS: If you could die before your appointment that would help us greatly
I was diagnosed last year and have been waiting for the medication, but there’s STILL a shortage.
It’s an absolute shitshow but it’s an invisible disability so no-one gives a fuck.
Genuine question- what is the benefit of having a diagnosis?
Is it for medication?
Completely ignorant sorry
I’ve been waiting nearly 10 years for a gender dysphoria diagnosis. And here I was starting to feel as if the NHS just hates trans people.
I recently waited almost 2yrs for an ADHD diagnosis, right now I have to wait for 7mnths for medicine
…then once diagnosed, you won’t be able to get hold of the medication anyway.